He learned the Foundation was hosting its 38th Conference in Newport Beach, CA, a five-hour drive from his home. I had never heard the word Marfan before.”Īfter talking with his cousin, Reg started to do online research and quickly discovered the Foundation’s website. “But when my cousin was here for the funeral, she said her daughter had some eye issues and, at the request of the optometrist, she was later tested and confirmed to have Marfan syndrome. “We just thought these were strange, unusual happenings,” said Reg. There had been a family history of heart issues and sudden death. ![]() ![]() Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who passed away suddenly at the age of 58.
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